by Belfast on Mon Jul 13, 2009 6:40 am
This scares the heck out of me to have even written, let alone sent, but...
here's the letter I emailed to editor of the freepaper (which contained the article that led me to aforementioned blog):
July 8, 2009.
Thank you for printing Rachel Cohen-Rottenberg's piece "Myths and Realities of Autism and Asperger's" in the July issue. I commend her daring in publicly revealing this new understanding of her identity.
Being perpetually misunderstood (for a plethora of reasons) is a painful niche to occupy. Especially appreciated link to the author's blog-and I encourage others to read that material. Wanted to share with the publishers my positive reaction to this wonderful resource.
Having an "invisible" disability can lead to inaccurate, untested conclusions about behavior, intent, capacities, and limitations of the person in question. Invisible disabilities can include the broad range of "mental" illness, (developmental differences & conditions/flavors/variations of "neurodiversity")-as well as "physical" illness (brain events, head injuries & strokes, among other diagnoses).
The stigma & shame towards one group of problems ("mental")-while equally debilitating, but medically visible "conventional" problems ("physical") get sympathy, respect, and accommodation-is an illogical & unrealistic double standard.
The mind (brain) & body are interdependent & symbiotic, combining to create our physiologies. We only imagine that these are separable/isolated realms/systems. Sadly, our culture continues to perpetuate these arbitrary disparities of attitude & treatment, inflicting unnecessary suffering (adding insult to injury), and inadvertently escalating negative interaction patterns.
Each individual is far more complex than how he/'she appears to strangers, on the surface. Educating one's community, by taking the leap of faith in sharing one's vulnerabilities, is an important step in helping us all interact more inclusively & with better mutual understanding. Perhaps this could embolden other folks to take similar steps, in communicating about the unseen conflicts & challenges they face.
-(my name & town)
"You cannot administer a wicked law impartially-it destroys everyone it touches, its violators as well as its upholders."