August 2012; What's Happening in your World?

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August 2012; What's Happening in your World?

Postby goddessoflubbock on Thu Aug 02, 2012 4:20 am

Band camp has started, school starts in 3 weeks. I've got most school supplies. And I'm down to $37 until Friday ugh!!!
"shorter of breath, and one day closer to death" - Pink Floyd

“There is no such thing as 'on the way out' as long as you are still doing something interesting and good; you're in the business because you're breathing” Louis Armstrong
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Thu Aug 02, 2012 5:05 am

Meeting care co-ordinator next week to go through the funding application! Seems to take forever to get anything done.
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Re: August 2012; What's Happening in your World?

Postby goddessoflubbock on Thu Aug 02, 2012 9:09 pm

Governmental agencies seem to suffer the same issues around the globe. Imagine if people got the help they needed when they need it. Boggles the mind!

DS is a tad cranky, he's not a morning person and the heat is awful. Now only 5 of 14 tubas are showing up!
"shorter of breath, and one day closer to death" - Pink Floyd

“There is no such thing as 'on the way out' as long as you are still doing something interesting and good; you're in the business because you're breathing” Louis Armstrong
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Sun Aug 05, 2012 11:01 am

When I needed it would have been 30+ of my 37 years ago, really! Certain amounts of delays are understandable; I don't expect any magic wands to wave all the problems away or anything but it's just I really ran out of ways to even barely manage & cope some time ago. My real concern isn't that I might drum up the courage to take the supposed 'easy way out' but that I'll lose the plot & go out to hurt some relative innocent. Not that it would do any more good to go out & hurt the people more responsible, anyway but I see no way to anticipate the results of going crazy. I mean, supposedly, if a 'normal' person goes a few days without some meaningful contact with some other human being, they're likely to struggle a lot. Granted, I'm less sociable than most but I don't recall ever managing anything I'd call meaningful contact! Any time I try to talk about anything important to me, there's always some 'reason' it's not appropriate & I can't see most of what I'm saying as too deep or complicated for most people to understand. Officially, I'm only slightly above average intelligence & I really don't think most people I knew were stupid. Sorry, nowhere better or obviously so to post this.
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Re: August 2012; What's Happening in your World?

Postby goddessoflubbock on Sun Aug 05, 2012 8:52 pm

Frankly it's felt to me like what's considered average intelligence has slipped a notch or two over the past decade or so. It just seems that even common sense has fallen by the wayside!

When DS was first dx'd he was 10. I applied for the CLASS program for him thru Medicaid. It's meant to give help to special needs kids, both at home and school. The waitlist for services was 8 YEARS! But the lady said it will probably be much shorter as people age out, die, etc. I just got a letter asking if we're still interested. DS will be 18 in December :/. That is slow...

DS is tired but managing. He's at band camp all day then works at night! I'm very impressed.
"shorter of breath, and one day closer to death" - Pink Floyd

“There is no such thing as 'on the way out' as long as you are still doing something interesting and good; you're in the business because you're breathing” Louis Armstrong
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Mon Aug 06, 2012 5:51 am

Huh. Supposedly, 'common sense' would tell me how to mange/ deal with such stuff! I was only DX'd a few years ago - that took 30 something years but still.... Thanks!
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Re: August 2012; What's Happening in your World?

Postby adhocisadirtyword on Mon Aug 06, 2012 5:52 pm

I don't think any amount of common sense can making dealing with government agencies easy. They tend to defy any rules of logic.
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Mon Aug 06, 2012 6:30 pm

If I could deal with the original social problems, I'd not need to deal with the government 'agencies'! That's where the 'common sense' is supposed to come in. Only I seem to have none & it's often said that it's not common at all & you'd be astounded at what it can be claimed is 'common sense', too. The 'support workers' would be easier, if I was socializing with them, to most people. Only, of course, I don't meet them for that! Oddly, it seems many of them are confused about the purpose of meeting somebody who's looking for some sort of help/ support but best not get me started on that.....
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Re: August 2012; What's Happening in your World?

Postby goddessoflubbock on Tue Aug 07, 2012 2:18 am

I would disagree. DS has loads of common sense, always has. But social skills? They came very hard. And he's not great but he gets by.

DD OTOH is a social butterfly. The phone is always ringing, I can't keep up! But common sense? Pfft! She has not one drop!!

DH has a job interview tomorrow, SOOOO excited!!
"shorter of breath, and one day closer to death" - Pink Floyd

“There is no such thing as 'on the way out' as long as you are still doing something interesting and good; you're in the business because you're breathing” Louis Armstrong
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Tue Aug 07, 2012 6:40 am

Yeah but it's 'normal' people, who can make just about ANY claim about such stuff sound reasonable, to most others & how I'm to deal with them 'answering' some question that I really want a proper answer to with such stuff that's the problem. Not just that people say things that upset me or that they talk nonsense, on their own. My landlord was making scary noises about evicting me for 'reasons' I won't go into but there was no notice to quit yesterday, so he's not doing it, after all.
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Re: August 2012; What's Happening in your World?

Postby Sophist on Tue Aug 07, 2012 8:04 pm

The morning went fast but the afternoon seems to be snailing along. Probably because I'm just anxious to leave work and go home.

I've been craving some ground beef, so tonight I think I'm going to fry some up with various veggies, carmelized onions, and some gravy, and that pour it over a baked potato. Probably have watermelon for dessert. Yum...
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Tue Aug 07, 2012 11:15 pm

Very good meeting with care co-ordinator earlier! Going for supported housing, should get the 'enabler' to help socialize in a few weeks & getting some 'better' version of the CPN. Apparently, this one was mostly to review my needs! Which seem to have turned out to be a lot more than was thought previously..... :P
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Re: August 2012; What's Happening in your World?

Postby Sophist on Wed Aug 08, 2012 5:12 pm

Excellent that it sounds like you'll be getting the support you need, Bruce. :)
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Re: August 2012; What's Happening in your World?

Postby BruceCM on Wed Aug 08, 2012 7:23 pm

I sure hope so! Thanks
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Re: August 2012; What's Happening in your World?

Postby goddessoflubbock on Fri Aug 10, 2012 6:28 pm

DD is in full on teenager mode, ugh! She knows everything AND she's cranky :/

Today was school registration day. Not sure why they have to register anew every year. Just give me a printout to sign that nothing changed!
"shorter of breath, and one day closer to death" - Pink Floyd

“There is no such thing as 'on the way out' as long as you are still doing something interesting and good; you're in the business because you're breathing” Louis Armstrong
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