28Age when seizures began:
about 24/25Other diagnoses:
AS, PCOS with hirsutism, arthritis, asthma, multiple allergies, chronic sinus/ear infections (investigating an immunodeficiency), IBS.
I'm in the midst of seeking diagnosis and treatment for what I suspect is epilepsy. I have 3 different sets of seizures:
1) These occur when I'm tired. Combination head buzzing/tinnitus, peaks of "buzzing" include the feeling of suddenly jutting forward, combined with a dull flash of white light, and brief eye movement. These have on rare occasion been accompanied by the sound of a single voice shouting (no words, just a yell). These seizures seem to be triggered by extreme quiet. They can be prevented by having white noise in the background, like a fan or heater, or by playing music.
2) Left hand/forearm muscular contractions. These also occur when I am tired or stare off into space. They can be accompanied by increased auditory sensitivity, where sound becomes painful. It's this seizure set that has become most problematic recently, causing me to seek diagnosis and treatment. These only used to occur when I was lying in bed and getting drowsy. Now they occur just when I'm relaxed or stare into space, so they're no longer relegated to my home but while I'm out and about. I'm not certain if the staring has become part of the seizure though. I don't lose consciousness, although I can't tell if my consciousness is impaired.
3) This one is somewhat odd and embarrassing and is THANKFULLY a rare occurrence. I don't know what muscle or set of musculature is contracting, but I have occasionally had myoclonus around the left labia muscles. Needless to say, the sensation is HIGHLY distracting, since activity of those muscles are involved in orgasm. But also I suspect they stop after awhile because the sensation IS so relevant and some other part of my brain is able to inhibit the activity because after awhile I realize "Oh, this is definitely not an orgasm!"