Really cool conference

Come to this forum to discuss anything and everything about Autism relating to you or your family/friends.

Postby Aspen on Tue Jul 17, 2007 6:20 am

Belfast wrote:
Aspen wrote:I like your mazes and your mandalas are really nice too, Belfast.

I figured a few people here were past members of Neurolands & would be able to see the things there. Thanks for checking them out.


I couldn't remember my portal password at first, but I managed to log in eventually.

:)
User avatar
Aspen
Site Admin
 
Posts: 4365
Joined: Sun Mar 19, 2006 12:25 am

Postby odeon on Thu Jul 19, 2007 12:37 am

I like your mazes, Belfast. Can't remember my Neurolands password, though. :?
User avatar
odeon
Cerebrum
 
Posts: 1783
Joined: Sat Mar 18, 2006 4:00 pm
Location: Where my laptop is

Postby Belfast on Sat Sep 29, 2007 8:17 pm

Well, boyfriend & I went to Boston ASD conference yesterday. Unfortunately, I couldn't handle any more after the first day, so we left after day one & missed day 2 (today). It wasn't bad in itself, just too much & all at once (for me).
Have variety of reactions to what I did experience, a lot of the stress was the novelty & actual conditions in environment: both of the conference center with 1,000 attendees & downtown Boston itself. Writing about it necessarily oversimplifies my mixed feelings & complicated opinions about this. My impressions aren't likely to be what others would find interesting "take-away" info...

Neat to see (from far away seat high up, so I could leave if need be) & hear Tony Attwood (he seemed charismatic)-though echo of speakers in sound system made half his words garbled blaring that I couldn't quite decipher. Carol Gray had a voice, style of intoning with excessive exuberance (kinda' like that of comic actress Vicki Lawrence) which bothered me.
Those are not value judgments, merely my sensory reactions to their lecturing-these are relevant in whether I can absorb the material they were conveying.

Traffic (people & cars) was overwhelming for me-understand others would agree, but some can & do still cope with that environment. Being around so many people during the lectures (stairs were crowded at each intermission) was scary, though for a few hours I could handle it. Didn't know anyone, surrounded by total strangers, most of whom were "parents of" or "clinicians for", rather than being themselves ASD, and I felt like an outsider.

Went to the art show which began at end of day's sessions at 5 p.m. because I wanted to see how my things looked framed & also what other people had exhibited. Especially liked the work of a couple folks: Sharleene Hurst and Sarah Eisenmann. Those appealed to me because of similar aesthetic to mine. Met a couple people who were behind setting up the show (making it happen)-they were pleased to finally meet me (which was a pleasant surprise for me), after having seen my drawings & our having exchanged emails for almost a year about this project.

The motel where we'd reserved room was not okay. It was noisy from the room next door, so we got a different one. That room was also noisy (with loud, boisterous & crass conversation coming up from bar through the room's a/c unit). The windows were sealed shut, the place felt "too wrong" to me, I couldn't stand it & kept crying. Boyfriend said we could leave, I said you drove us here this morning & haven't slept, I can't ask you to do this. Tried to get our money back (since we were barely there an hour) from manager of motel but he argued & got mad at us, boyfriend was able to get half refund.

Those are some pieces of my adventure, it had ups & downs.
"You cannot administer a wicked law impartially-it destroys everyone it touches, its violators as well as its upholders."
User avatar
Belfast
Amygdala
 
Posts: 767
Joined: Wed Mar 08, 2006 6:30 am
Location: Northeast U.S.

Postby Sophist on Sun Sep 30, 2007 12:13 am

That sounds like quite an adventure, Belfast. Sounds like the exhibit went well though. :)

How many artists were involved?
Image

My blog: Science Over a Cuppa - scienceoveracuppa.com
Manny's blog: Cortical Chauvinism - http://corticalchauvinism.wordpress.com/
User avatar
Sophist
Site Admin
 
Posts: 18296
Joined: Sat Mar 04, 2006 1:27 am
Location: Old Louisville's grand historic district

Postby Belfast on Sun Sep 30, 2007 5:59 pm

Sophist wrote:How many artists were involved?

29.
"You cannot administer a wicked law impartially-it destroys everyone it touches, its violators as well as its upholders."
User avatar
Belfast
Amygdala
 
Posts: 767
Joined: Wed Mar 08, 2006 6:30 am
Location: Northeast U.S.

Postby hesperus on Sun Sep 30, 2007 7:13 pm

That all sounds very familiar (apart from the conference theme, that is). I've never stuck these things out for more than a day. I rapidly become overwhelmed by so many things, and can see how no one else there seems to have the same thing. One time, I even got someone to travel over the next evening to take me home. I hadn't been eating, and could barely move. I doubt I'd attempt it alone again, even with a solid plan in place to reduce sensory discomfort.
Last edited by hesperus on Mon Mar 04, 2013 12:18 pm, edited 1 time in total.
hesperus
Frontal Lobe
 
Posts: 551
Joined: Tue Jun 12, 2007 10:30 am

Postby Sophist on Sun Sep 30, 2007 10:36 pm

Belfast wrote:
Sophist wrote:How many artists were involved?

29.


Wow, that's a good number of artists.
Image

My blog: Science Over a Cuppa - scienceoveracuppa.com
Manny's blog: Cortical Chauvinism - http://corticalchauvinism.wordpress.com/
User avatar
Sophist
Site Admin
 
Posts: 18296
Joined: Sat Mar 04, 2006 1:27 am
Location: Old Louisville's grand historic district

lengthy 2nd essay on Boston ASD conference

Postby Belfast on Mon Oct 01, 2007 12:43 am

Can only recount the ordeal & adventure in snapshots, not continuous form-it's too overwhelming emotionally reliving it through memory and it takes me too long to decide which ideas to convey & choose which words.

Wish & hope that a recording was made of what I missed on day two, especially since that got into more interesting stuff. I'd really like to be able to get a video/dvd so I could get the benefit without subjecting myself to the unbearable conditions of being there.
There were 3 lectures on schedule each day. By end of first day we were only up to pg. 31 of an 80+ page-count packet, they said to read up to pg. 39 as homework before next day. Not all the pre-packaged notes were self-explanatory, so I'd prefer to get the elaboration & fleshing-out that the presentation's speakers intended.
They were using an Apple computer onstage, which led to a chuckle of shared recognition (at start of proceedings) throughout audience when the familiar Mac screen-saver came on ! I have an emac so was 'in on'-rather than outside-group's common zeitgeist.

Lecture 1: We found seats in audience, but near less densely populated top back section, it was like theater inside at steep slope. Was uncomfortably aware of person nearby, blocking exit from our row at end, couple seats over. At least one could climb over back of seat to row above & get out that way.
During part of Gray's talk she said for us to form teams with people next to us to discuss & answer a question. Kinda' like they tell you to do in church-turn to your neighbor, greet them/introduce yourself & shake hands type of thing. That made me supremely uncomfortable & I started silently weeping in panic. Yes, I was there w/boyfriend-but the guy a couple seats away indicated he was w/us when another row asked him to join their group, and in general people were looking around at each other & murmuring (which I believe is just fine-but personally, physiologically can't stand being engulfed/flooded by swarm). The exercise she explained was accompanied by progressively louder and also suddenly loud classical music snippets, indicating when time was up, to stop talking & listen to her. That was really unpleasant for me & I had to keep covering my ears.

Lecture 2: I was tired & sweaty from our walk (trying to find the Burger King for lunch), overwhelmed from not being able to find our way around the streets, and being around people outside as well as indoors. This time I stayed up behind the seats, along cool hard smooth wall, where I could stretch out unseen (well, less visible). Lack of sleep & the exercise over lunch break had worn me out. After sitting upright awhile, I even laid down flat along wall & closed my eyes (didn't nap-just blocking out distractions & conserving energy). Was progressively becoming alienated from what was going on & jotted note to self:
"The roar, guffaws, applause, etc. of the crowd makes me recoil & feel not in on 'it'-the shared reaction, assumption, perspective. Makes me want to run away, hide, it's too full of other humans. As if the crowd were a thing, organism in itself, not composed of individuals with differences. like a laugh track-it's distancing for me being surrounded by all of THEM, being similar to each other. Too loud, noisy, can't even think or feel clearly because of all these people in the way, not to mention the strange foreign places/things which comprise my current environment. Echoing is such that I can't hear/understand what they're even saying, it's just garbled blaring."

Lecture 3: Kept procrastinating going back into lecture room, told boyfriend go ahead, I'll stay out here. I sat on padded bench in hallway outside the lecture room. Then I lay down while following along with notes, as I could hear much of what was being said pretty well, there was open doorway between. I was hidden from view of those inside, except when people came out to use restroom (which was in same hallway). That was relatively better location for me, though I was still restless (and desperately in need of rest), feeling ornery and overloaded (social & sensory stress), went outside to smoke-wandered around the maze of a building a bit, too. Hadn't watch nor could I see clock (there were two inside conf. rm. but one of them didn't work/was wrong !), so was just waiting & waiting for it to finish.

Then we went downstairs to see the art exhibit setup, which was in same room as all these sponsor tables (incl. Autism Speaks and various schools & products) with pamphlets (nothing relevant to me, as a dx'd person). One book publisher had table, selection of offerings was disappointingly limited-once I could get through huge crowd ringing whole area and see what the books were. Boyfriend found someone to talk with in art show room, I had nothing to do (sitting alone in chair in there was so dull but all I could manage) so walked up & down the staircases a few times, circling around after crossing floor to stairs on other side. It was attempt to familiarize myself with routes throughout building, since I kept getting confused & lost-also it was something to do, when I couldn't do anything else. Had no role to inhabit because being "an artist" is devoid of meaning to me & I had no way to just start conversing with strangers. We left before the reception ended because of aforementioned factors, in addition to which I was bored (underwhelmed cognitively & aesthetically).

Misc. details: Sign alongside Rte. 2 amused me enough to write it down: "Use caution Solar glare in a.m.". I like taking phrases out of context & turning them over in my head (suppose one might label that echolalia or hyperlexia, but who cares ?)-I cling to & repeat what my brain tells me it enjoys. Wouldn't have known what road sign meant except that we were experiencing it (solar glare) right before we saw them, since it was sunrise (blindingly so), with huge-appearing dark red but brightly glowing sun next to horizon (in direction in which we were traveling). Took an Ativan around 8 or 8:30 a.m. (while stuck in traffic on way into Boston) for anticipated anxiety, no way for me to know if it helped. At least I got a free pen (a Bic Biro with AANE stamped on barrel-I quite enjoy complimentary & customized stationary supplies).
"You cannot administer a wicked law impartially-it destroys everyone it touches, its violators as well as its upholders."
User avatar
Belfast
Amygdala
 
Posts: 767
Joined: Wed Mar 08, 2006 6:30 am
Location: Northeast U.S.

Postby Sophist on Mon Oct 01, 2007 3:25 am

Hehe, "use caution solar glare in am"... Kind of a funny sign. Especially since, how does one prepare for solar glare? Either you can see or you can't. I'm sure slowing down helps, but maybe that might've been a better sign...

"Slow down, solar glare".
Image

My blog: Science Over a Cuppa - scienceoveracuppa.com
Manny's blog: Cortical Chauvinism - http://corticalchauvinism.wordpress.com/
User avatar
Sophist
Site Admin
 
Posts: 18296
Joined: Sat Mar 04, 2006 1:27 am
Location: Old Louisville's grand historic district

Postby hesperus on Mon Oct 01, 2007 9:49 am

Seems very strange to me that they'd have an ASD conference yet not consider sensory issues, for instance. That greeting part among audience members sounds very overwhelming. Were they trying to demonstrate something, or just trying to make people mix?
hesperus
Frontal Lobe
 
Posts: 551
Joined: Tue Jun 12, 2007 10:30 am

Postby beware_the_sluagh on Mon Oct 01, 2007 8:10 pm

hesperus wrote:Seems very strange to me that they'd have an ASD conference yet not consider sensory issues, for instance. That greeting part among audience members sounds very overwhelming. Were they trying to demonstrate something, or just trying to make people mix?


I was thinking a similar thing - it didn't really seem to be an ASD friendly place at all. Although I believe it was said that there were many family members, etc, rather than people with an ASD, one would think everyone would be more considerate and accommodating.
"Your typical day is full of moments where you ask for a cup of coffee and someone hands you a bag of nails."
- Scott Adams
"But not to worry, you've still got your chicken. As long as you don't lose your chicken you'll come out of it okay." - ruth
User avatar
beware_the_sluagh
Nomad of the Time Streams
 
Posts: 2586
Joined: Thu Sep 20, 2007 10:50 am
Location: New Zealand

Postby hesperus on Tue Oct 02, 2007 7:28 am

Perhaps these things just don't occur to them. People in general don't seem to be good at putting themselves into other's shoes (or a group of people with similar traits).
hesperus
Frontal Lobe
 
Posts: 551
Joined: Tue Jun 12, 2007 10:30 am

Postby Sophist on Tue Oct 02, 2007 4:36 pm

hesperus wrote:Perhaps these things just don't occur to them. People in general don't seem to be good at putting themselves into other's shoes (or a group of people with similar traits).


Yeah, especially if it wasn't a group of autistic adults organizing the conference.
Image

My blog: Science Over a Cuppa - scienceoveracuppa.com
Manny's blog: Cortical Chauvinism - http://corticalchauvinism.wordpress.com/
User avatar
Sophist
Site Admin
 
Posts: 18296
Joined: Sat Mar 04, 2006 1:27 am
Location: Old Louisville's grand historic district

Postby Belfast on Tue Oct 02, 2007 7:58 pm

Appreciate people here discussing/dissecting aftermath of this with me.

Am really bummed out because I'd hoped recording of some sort had been made of day 2 (didn't want to miss it, just needed to leave).
I emailed AANE & reply said they didn't have Gray & Attwood's permission to record, so none was made.
Grrr. Sigh...(am mad & sad at situation, no one to blame, and no inkling of what else I can do-if anything-about it). Wonder whether either speaker would have anything comparable, in recorded form, of material they covered on that second day. Feel so insignificant (they each get tons of email from strangers, I'm sure) that if I did try contacting either of them they'd probably brush me off-or tell me to purchase something pricey from their previous programs.

Guess I was laboring under a delusion, a misapprehension-that attending conference would be okay for someone w/ASD, not just for NT's who deal with dx'd people. I thought it would be intellectually educational, which it was-but it was also too confrontational (on sensory & social levels). Part of what confused me was art exhibit-since they were showing my work in same place right after day 1, I figured it would be psychologically safe, accomodating environment or atmosphere overall. To be clear-there was no hostility, just unawareness.

Which leads me off-topic to another perennial issue-who's 'mind-blind' ? "Us" (people with ASD) or "them" (NT's) ? Both !

Don't know what many of the lessons in presentation meant because I missed subsequent parts where point was explained, either through my anxiety/panic state or because I was no longer in attendance (next day).

Interest was expressed in buying the 2 artworks which I had displayed but weren't for sale (I did have 2 others that were for sale, ones I wasn't attached to)-my reactions to that are mixed, am both pleased & stressed. Have intense long-standing irreconcilable (so far) feelings about the whole issue of selling, pricing, creating things-but that's another thread. The art show moves on to other locations early next year, don't expect I'll be going to those exhibit openings, though.
"You cannot administer a wicked law impartially-it destroys everyone it touches, its violators as well as its upholders."
User avatar
Belfast
Amygdala
 
Posts: 767
Joined: Wed Mar 08, 2006 6:30 am
Location: Northeast U.S.

Postby beware_the_sluagh on Tue Oct 02, 2007 8:08 pm

You should probably email and explain the situation and see if you can get some kind of recording anyway. Even if they ignore you, well, you haven't lost anything and maybe you will have success. Don't be too hopeful I guess, if it will make you feel worse.
Have you emailed the organisers as well to say that people with ASD are interested in going/do go as well, and that the environment is not very accommodating? Although this won't help you, it may help someone who goes to the next conference. It's such a shame, because it sounds like it would have been good but ended up being a terrible experience. Good on you for going though. You must have known there was potential for it to turn out like this, so I think it is rather brave of you :)
"Your typical day is full of moments where you ask for a cup of coffee and someone hands you a bag of nails."
- Scott Adams
"But not to worry, you've still got your chicken. As long as you don't lose your chicken you'll come out of it okay." - ruth
User avatar
beware_the_sluagh
Nomad of the Time Streams
 
Posts: 2586
Joined: Thu Sep 20, 2007 10:50 am
Location: New Zealand

PreviousNext

Return to The Personal Side

Who is online

Users browsing this forum: No registered users and 1 guest

cron